The morning of Lexi's hospital visit was long but we made it through - foodless and all! Thankfully the timing worked out as the MRI was pushed back 2 hours which meant that she could eat until 8:30 am vs. 6:30 am. As you can likely guess, Lexi took full advantage of the additional time and had a leisurely and abundant breakfast! Hard to imagine but she did eventually get full enough to walk away from the table and I took this as my clue to get out and about. We spent the morning on the playground and she could not have been happier.
We left the house at 11:00 am and from the minute we stepped foot in the Sanatorium Hospital Lexi knew something was up and she did not like it. Additionally she was hungry, wanted food and was tired. Bad combination no matter how you look at it. Thankfully BaBa was there to meet us so that at least put a smile on Lexi's face for a few minutes. After registering we were admitted to the pediatric ward and got situated in her room. We brought plenty of toys and games to try to offer as distraction and to help settle her down a bit.
The next several hours were long and emotional as Lexi was prepped for and had her MRI and EEG. The team that worked with her was professional and caring - she was in very good hands. Lexi was scared, upset and angry - if only Lexi knew and understood what was happening and why. It was all being done out of love and care. As weary as I was to give Lexi anesthesia it was the best choice for so many reasons - so thankful for the advice and inputs from friends who have BTDT as well as from our own personal family nurse, my sister Karen.
Going in for the MRI
EEG - Lexi was coming out from the anesthesia at this point but still groggy and back in my arms
After the tests, we were brought back to the room to give Lexi time to completely come to. It didn't take long before she was ready to eat - and she ate lots despite the nurses caution to go slow.
Thankfully, we were quickly able to convince the nurses that Lexi was completely alert and in good spirits and we were given permission to check out. We were home before Ella was asleep - and how happy the girls were to see each other!
So the day is done and we could not be more relieved to have it behind us. All I can say is that Lexi does not only have a fighting spirit but she is also so brave and full of courage. We await the results with lots of hope but at the same time with the strength to accept what ever the outcome may be.